I just got off the phone with a delightful young lady, wanting to talk to me about Chronic Fatigue Syndrome. She had found me through an article I wrote for CFSID, several years ago about the devastating effects of this invisible disease and how it had all but destroyed my life.
This phone call reminded me just how far I've come since 2000. I was diagnosed with Chronic Fatigue/Epstein Barr and told that I needed to be on permanent bedrest... indefinately... and that there was no cure. I had a list of symptoms a mile long and could barely function, in spite of having to work at a job I hated and raising a teenage daughter I adored. I was also in an unhappy marriage, which seemed to be sucking the life out of me. My self esteem was sub-zero and in addition to all of this, I supported five horses and had no social life. You can say my life wasn't exactly a fairy tale!
I had the priviledge of going to one of the leading immunologists in the country, who was doing groundbreaking research in this field, in addition to AIDS. Through a series of treatments and a pile of pills, he got me back on my feet so I could continue the rat race. I did fine for a few years, then went down-hill again and discovered that now my body had stopped creating immunogloblin. This time the treatment was insanely expensive and I would have to continue it (along with all the pills) for the rest of my life. I was miserable with the treatments, but was told by more than one specialist, that I had no options.
Those doctors were wrong... I had plenty of options and I began exploring them! I refused to be defined by a diagnosis and was not going to spend the rest of my life having infusions and bed rest! I started seeing an energy healer twice a week for almost a year. He initially told me to "throw all the pills away!" but I wasn't buying that. I became his student and learned about the principals and benefits of energy healing... and I started feeling better!
During this time I had gotten a divorce, met someone new and remarried. I also started changing my mindset... and started telling myself, "THIS DISEASE WILL NOT WIN! That was my mantra and I stuck to it.
I stopped all the meds and the monthly infusions... and I didn't get sick or die! Maybe the doctors weren't right about everything... maybe, just maybe this disease CAN be conquered!
I stayed strong and refused to give-in. There were lots of positive affirmations and the constant determination to not allow this disease to destroy my life. I took gradual steps to improve the quality of my life and eventually I was led to study Reiki and become a Master.
Bottom line is that 11 years ago, I was told that my life was essentially over and that I needed to spend the rest of it in bed. Seven years ago I was told that I had to continue to receive treatments for the rest of my life. Five years ago, I walked away from it all... taking only over the counter meds these days for occasional headaches and/or sinus issues. I have no signs or symptoms of Chronic Fatigue, Epstein Barr or Common Variable Immunodeficiency.
Bottom line... Be a bitch! Get stubborn! Don't accept a doctor's diagnosis as a "life sentence"; research everything; ask for Divine guidance and assistance; and get out of your head... keep your thoughts positive. Most important... don't allow a disease to define who you are! You are a beautiful person and deserve the best life has to offer!
Blessings, light & love!
~ <3 ~